#Beating the Odds…..My Story of Epilepsy.

Well…..here we are at the end of Epilepsy Awareness Month.  You have heard from me on being the wife of an Epileptic and what is the like for a spouse.  Now let me intro you to my husband who has Epilepsy.  He has struggled with this since the age of 12…he has been my husband for 30 years and has raised two sons, he worked at one point in the medical field, he drove a car, and he was very involved in many areas of life…and now find out where life has left him.  Grab a cup of coffee and take the time to read his story ….right from someone who struggles with a chronic illness daily and sometimes hourly but has found a life within this life and is #beating the odds.

resumeofamother_familyI really appreciate the opportunity to tell my story of Epilepsy in my life and what is like to live this life daily and hourly! Find out firsthand the life that some of us live and how I have adapted to a new norm.

For me it started many years ago… I guess I was about 10 years old. I had been asked to stay after school because of a problem.  I actually had been in trouble at school for something  … so when it was time to leave I jumped on my bike to ride home but I did it in anger.

When I got to the traffic light it was green for me…..but the car on the other side had a red light, and did not stop.  Needless to say the car hit me and I went flying into the windshield with my head getting hit. I can only recall half way across the road and then waking up in the hospital.

Well I was pretty beat up with a dislocated my clavicle, got a big bump on my head and chipped my front tooth.  They decided to keep me in the hospital for a couple of days under observation.  At that time they could only diagnose me with what they thought was broken …the seizures were not noted yet.  It wasn’t until a few years later that I had my first observed seizure…and that is where my story begins….

I sensed things from time to time….but it was not something that I could really explain.  Not knowing that I had a problem…..I just dealt with it the best I could.  It was a hard thing…not being able to explain to anybody what I was feeling or going through.

Not knowing what a seizure was ….I did not know what was wrong with me.  It wasn’t until years later at college that I had a large enough seizure and finally got the help that I needed.  After that….my life completely changed. One major thing that changed was that…. I learned quickly how people will treat you differently when they do not understand what is going on!  People that treated me normal…such as family and friends….now treated me like the hardly even knew me.

People will avoid you for fear that something might happen while you are with them, they are afraid of what to do.  People will just not talk to you since they don’t know what to say.  People will talk about you only feet away as if you can’t hear them…..and yes I can hear you.  They will ask my wife a question to avoid actually talking to me.  I have said to my wife that it’s kind of ironic how some people seem to be able to understand if you have a sugar problem or something else wrong…and they seem to be able to cope with that better than people with a seizure problem. Don’t be afraid of us…..we are just like you with added personality in our life.

People are educated and seem to know the steps on how to care for a person that has a sugar attack or similar …..But when somebody has a seizure… people panic!!!!

I will say that it affects every area of your life, but I will not let it have power over me!!!

A quotation that has always motivated me is and that I live by…

“Look for the good times along the way .You can’t put off enjoying life, waiting for the day when epilepsy is no longer an issue.”

 – Diane H. (Mother of patient)

Epilepsy has affected my marriage in many different areas.  It has affected how I am as a father to my two sons and now daughter-in law. My sense of self-worth is something that I struggle with all the time and trying to fit in the mold of husband and father…..my self-worth takes a back seat.

It is hard to copy-of-file_0001be the head of my home, and someone who my wife can depend on ….because many times my thoughts are not clear. I have days where I know exactly what is going on and then many days where I have to just depend on my wife and children to help direct me.  As a man that is something that is unspeakably hard for me.

After years of struggling and many situations with my seizures…..It has gotten to the point where I finally had to go on full-time disability.  Let me tell you from again a husband/fathers point of view….. it was a definite low point in my life and it took me a long time to get over it!!

I have found that having seizures has given me a unique perspective on life.  I can relate to many people who struggle with chronic illness.  The most useful perspective is with my youngest son who has Autism. Both he and I struggle neurologically with many things, I can so relate to him when no one else can.  This has been a huge blessing for him and also for my wife. It gives her a sense of security…knowing that someone can honestly understand some of what our son goes through.  There are times when both he and I have reacted to things because of our neurological problems and we can relate to each other.  For instance when the weather is stormy… I know it’s going to be a rough day for me, and I know that it’s going to be a tough day for him as well.

One true blessing in the last three years of my life has been the moving to a new church!  I have found a Pastor who accepts me …just as I am.  He is aware that I have epilepsy…yet he is willing to work with me and in doing so this has brought back my confidence and self-worth that I had lost. He always keeps an eye on me and he might come over and say “are you okay?” but I know he has my best interest at hand.  By him leading this way….it has shown the church that I am ok….it has allowed the church family to feel relaxed around me and my family.

It is still difficult though in many other ways. There are many times I have to use an electric scooter rather than walk and worry that I might fall at storecopy-of-file_0008s or other places.

I am blessed have a wonderful wife and family, as well as a strong support group in my church… and some good friends who I can depend on.  I would recommend to anybody that has any kind of health problems whether it is epilepsy or any other chronic illness to make sure that you have a good support group in your life…it WILL make a difference.

How can you help me and others with chronic illnesses….

  1. Don’t stare
  2. Don’t avoid me/us….come talk to me/us.
  3. Don’t talk as if we are not in the room.
  4. Don’t treat us like we are weird.
  5. Don’t act like if you touched us we will seize on you or that you will catch what we have.
  6. Treat us normal!!!!
  7. Treat us with respect!!!
  8. Remember we were created to be a unique person and to carry out the work that God intended. Don’t Judge us for that.
  9. Remember that people with illnesses are not being punished for past sins!
  10. Most of all remember we are a human being with families, lives and feelings. Treat us the same way you would like to be treated.

Feel free to comment below if I can help you in any way.  My wife and I would love your feedback and to hear from you.

Thank you for letting me share my story and if you have not read her Blog yet on being the “Wife of an Epileptic”.…check that article out too.

Graeme M Wilson I – Husband of Resume of a Mother

Planner Nerd, Planner Community, Planner Goodies….

Are you a planner Nerd?…

With life being as crazy as it is…I really don’t know how people live without a planner.  Now planners come in all shapes and sizes and those of us who would classify ourselves as part of the “planner community”, we love them all!

I started with a little pocket one that I received in the mail at age 19 and I soon refile_0009alized when I started working that this was the only thing that kept me out of trouble from double bookings.  I was working 3 jobs and of course trying to have a social life.  Now fast forward to 30+ years later and here I am still using a planner to keep my sanity….but even better… I use several.

Planners are part of my daily dress and essential to thfile_000e day and something that I would classify as an accessory.  In addition to classifying my planner as an accessory…I love bags (another sign of a planner nerd), earrings, scarves, shoes, bracelets and lipsticks (yes that was plural lipsticks).  A planner to me is my life line…not only for keeping my schedule in order, but I faithfully use an A – Z file system for basic notes I need to keep for lists, journal notes, important info you just don’t know where else to store it…. and so much more.

When I started out it was just a calendar and now as you can see I use it for so much more.  How do you use your planners?  Which kind(s) do you use? My favorite and my go to is a file_0006Purple Personal size Malden Filofax.  I must admit I am hooked on Filofax anything. I then use a faux Malibu by Franklin Covey for my house binder/planner; I have an A5 Color Crush for my blogs posts and a Travelers notebook that I tried using for my go to ….but now it stares at me for a purpose.  I also have a small pocket-size Target planner that I use for my church schedule, notes, and ministries that I am involved in.

My home office has turned into my planner office (or at least I like to think of it that way). Yes of course, the Dollar Tree and Target Dollar Spot and I have become good friends when I am looking for my planner goodies.  Speaking of planner goodies….anyone interested in a give a way?  See notes below….

I am obsessed with sticky notes, pens, and page flags….YIKES…I am a planner nerd!  I have a wonderful pen pal and we do an exchange every other month.  She lives in Europe so it is fun to exchange USA items and European items together and even though we have never met in person, I consider her a great friend.

My family and friends think I am nuts…and I probably am and that is just fine with me. Planners are fun for me and I enjoy not only using them in a practical way… but I am enjoying decorating them as most of you do too.  Washi tape is a stapfile_0005le in our home!  Stickers and any other goodies that I can use…help me be as creative as I want to be.  What goodies do you all use?  Where do you like to shop?

A few years ago, I became bored with the normal neat, schedule planner look and so the search began for me to find a new and different way to use my planner….and so it began. Once I watched You Tube…it  opened a world to me of planners, planner love and planner people which lead to Facebook groups for planners.

file_0008I began decorating and using this outlet as a quick creative way to fill my crafter need. Since my days are sooo busy these days and time is short for crafts and scrapbooking…this fills the gap.  I now enjoy scrapbooking and making junk journals which for me are much easier than the normal scrapbooking and  I love to use Travelers Notebooks for my junk journals. It keeps in small and neat and simple for me.

Well there you have it….my planner story. What is your story?  I would love to hear from you and all about your planners, goodies, where you shop, what planner you like the best and how you use them.   Leave a comment below and let me know.

Extra goodies are overflowing in my office with extra pens, sticky notes, andfile_0002 washi etc… They are piling up and in light of connecting with other planner buddies….I am going to do a give-a-way .  I am thankful for this creative outlet and I would like to bless someone with some goodies.

Here are the rules for the give-a-way:

  1. You must leave a comment below
  2. You must follow my blog
  3. You must live in the USA
  4. You must love planners

I am looking forward to seeing who wins….I will give you until December 24.  At that time I will pick a winner with the best story in the comments.


Lynn A. C. Wilson – Resume of a Mother


The life of a Wife of an Epileptic….how hard can it really be?

I remember when I started to date my husband and he said he had Epilepsy….it was a whole new world to me.  I watched and learned to know what he needed and what caused problems, so I would be a help.  His seizures were much different then and they didn’t even seem to be a challenge…little did I know.

My Wedding day……I remember standing at the img_0760top of the aisle ready to walk down to be married….my father whispered to me….”you don’t have to do this”.  He was reminding me that he had a long talk with me and that my life would be different, it would be hard, and we would not always know what was coming.  He wanted me to really think about this decision and not jump into a marriage that was not a fairy tale. Thisimg_0663 committment would be to myself, my future husband and children.  It would be a life that I would choose and not forced into…..and it would be a life time committment and a vow.

Well I can tell you almost 30 years later….we are still together.  I love him more now than I did 30 years ago.  Do I love his seizures?  Well….what I can say is that this is part of the package that makes up my husband and who he is and since I love Graeme…I need to accept this situation with as much grace as I can.

Is life easy as his wife?  No life is not… life is hard, frustrating, challenging and sometimes so overwhelming that I feel like I cannot breathe.  I can say that for me… I can understand what it is like to feel alone and yet be married, I can understand what is like to be a single parent and yet have a husband/dad always around, I can say that I understand the challenges of role reversal.  Let me explain a little about this…..

Epilepsy comes in all shapes and sizes!  Each day is never the same….we make our plans and then life takes over.  If my husband is having seizures….mood swings can come, anger issues, depression, lack of memory, needing tons of sleep and a total change of schedules and life style instantly.  These symptoms can also come on the “good” days when he is not having seizures which makes the good days not so good.  For us we have about 2 days a week of a really “good” day…and the rest are filled with these symptoms of some sort.

img_0757This leaves situations for me to handle on the fly all the time.  We can plan a family vacation, holiday or event and all of a sudden I am going it alone.  I might have Graeme with me but mentally and physically he is really not there with me.  This has left me many times….taking care of the kids and whatever else is needed pretty much on my own.  Many nights I get home from work to find him quiet, depressed, or seizing…..so then my nights arimg_0758e basically spent alone.

I find myself alone in my thoughts too…I don’t always know how to help him, I am afraid and fearful of what life can bring, I am tired and weary at times from just “keeping it all together” for my kids and making it as much of a “normal life” as I can for them….and I am still learning that “normal” is a moving target.

Now with that being said…..I don’t want to paint a horrible picture of our life.  YES, life is tough and YES it is VERY hard at times but we have a beautiful life!  My husband has been a rock in our family even when we feel like we are crumbling.  He has set the stage for us on his good days to walk close to the Lord for strength, for wisdom and guidance.  My problem is that I veer away from this path that I should be on daily and fear and anxiety sets in for me.  Graeme has allowed me to evolve into the woman who I need to be for our family.  I need to work full-time to keep a roof over our heads.  Graeme stays home and manages the home better than I ever could, he assists me in homeschooling our children, make the phone call’s needs, and keeps the running “to-do list” as current as he can for me.

I am blessed to have someone who fights daily with this thing called Epilepsy. I am blessed to have someone who does so much for us as a family.  I cannot even imagine as a man how he must feel.  He cannot work outside the home, he cannot drive, he cannot play sports, he cannot hang out with the guys, he cannot do the “normal” things
that he would like when he would like to and sometimes he will never do many of the things he dreamed about.  Yet he strives to beat the odds, lift his head and move forward daily!  Yes he suffers from down days….but his strength comes from the Lord and keeps him striving for a purpose filled life.img_0759

What can I recommend to other spouses who stand by and watch and stand by and support their spouse with Epilepsy? First before anything ….take care of !!!  I find that we put everyone before ourselves and then there is nothing left.  Take time for a good cup of coffee, take time for devotion, take time to sleep, eat and take time for a segment of time just for you…to shop, have fun, go to a movie etc….  Make a point of finding a support system for your family, your spouse and a separate one for yourself.  Support can come in the form of a structured support group, a Facebook group, family, friends, and your church group and in other ways that you might find. Also, remember you are living this unique life and not your friends and family who “think they understand”.  Sometimes there is a need for you to say stop, no, wait, not now….leave us alone, no thank you.  You are the one who needs to take a stand and protect what is yours…..we live with this and we know better than anyone else what is needed….be gracious if you can but be firm too.

Please let me know what your story is in the comments below….please let us know where you find your support. I would love to hear from you all!!!!!

Lynn A.C. Wilson – Resume of a Mother


Epilepsy Awareness and the Do’s and Don’ts…

November is “Epilepsy Awareness” month….but I often wonder is anyone really aware or how much do people really know?  We are a family who has been affected by Epilepsy.  We know what it is like to live with this daily; we know what it is like to live a different life copy-of-file_0005than most.  We know what it is like to consistently tweak our schedule, routine, meds, family events and almost everything else.  We know what it is like to just think that “we got it”, to find out we don’t…and what we thought caused the seizures changed again.

I wanted to write something about some of our challenges when trying to live a “normal” life and also in spite of this thing called Epilepsy.


How has Epilepsy affected our family….let me list a few things that either you will relate to or hopefully will give you some insight to what “normal” is for us…

  1. Seizures daily
  2. Mood swings daily
  3. Anger issues
  4. Depression
  5. Loss of full time work
  6. Loss of friends
  7. Way to much advice from everyone as to what we are doing wrong
  8. Loss of a drivers license
  9. Large medical bills
  10. Health insurance issues
  11. Always trying new meds
  12. Trying to balance being a parent with your kids when Epilepsy gets in the way
  13. Trying to balance being a spouse with your wife when Epilepsy gets in the way

copy-of-file_00071 in 26 Americans will develop epilepsy in their lifetime. An estimated 3 million Americans and 65 million people worldwide currently live with epilepsy. Each year at least 200,000 people are diagnosed with epilepsy. In two-thirds of patients diagnosed with epilepsy, the cause is unknown.

http://www.cureepilepsy.org/ or http://www.epilepsy.com/

Epilepsy is real and does affect many, many families.  Each story is different and each person is unique!

I write to you today not to complain but to explain.  We are a typical normal family with an added member call Epilepsy.  We believe that this is part of what has been ordained to becopy-of-file_0001 the package that makes up our family.  We call ourselves the #teamgwilson
….and we strive to live each day to the fullest, we try to beat the odds, aim for a
fun filled live, not hold onto what we do not have etc…

Our greatest strength comes from the Lord!  We also find strength in our church family, family and friends and some support systems that we have put in place.

With most disabilities we as humans are normally frightened by it.  It is different…we don’t know what to say, what to think, where to look etc… Just remember that these people are human, and have feelings.  DO NOT treat them different or like they have a rare disease.  DO NOT offer advice when you have no clue what is going on. DO NOT pamper them. DO NOT ignore them when they walk in a room, walk the other way and DO NOT feel sorry.

My husband is one of the strongest men if not the strongest man that I have ever met.  He is a true example of what a life with Epilepsy can be when someone purposes in their heart to live a filled and purposeful life.

We will be writing a 3 part articles this month to share and encourage you all on this subject.  To help paint a full picture the articles will include….what is like to be the wife of an epileptic, what is like to be the son and grow up with an epileptic dad and then what is like to be the EPILEPTIC person.

Feel free to let us know part of your story in the comment below.

Thanks for sharing our lives with us!

Lynn A. C. Wilson – Resume of a mother



img_05672 Corinthians 5:8b (NLT)

…for then we will be at home with the Lord.

There is no place like home….how many times have we heard this phrase or even shared this thought with someone. As children we watched a show where it was stated over and over again …”there’s no place like home, file_000-5there’s no place like home.” The older I get the more tender those words have become for me.

It was a rainy dark, cold nightfile_000…and we needed to head out right after a long day of work… many errands were scheduled for that night. The rain and the darkness
added to the mood of the night. I leaned over to my husband and said, “Tonight is a night that I really feel like just going home.” It was one of those intense nights when you just needed to be “home.”

What is “home” to you? It is a feeling, a place or a building or maybe something that is so indescribable but so wonderful to you? Home should be what makes you feel good, safe, secure and warm…as they say a place to hang your hat. Home is what most of us long for.

Home for me is my safe haven, a warm cozy place, a place where I feel like I belong, and a place like no other. It is a place where I can feel welcomed every time I walk in the front door. I can be greeted by a family who loves and accepts me for who I am. It is a place that feels familiar, and the sights, sounds and even smells are something that I enjoy and long to be around.

How many times have we been at the bedside of a sick friend or relative or at their funeral and heard it said that they are in a better place….that they are “home”file_000-2 now. Or even a person who is not well has referred to the fact that they just want to go “home”. Where is this “home” that they are referring to? That feeling or longing to go home to a safe, secure place, a place with a sense of freedom, a place so indescribable, but you know that you want to be there.

Take a minute and imagine with me a new home…will you be there with me? I am in the process of having a mansion built for me. I know it will be just the right size, shape and color. The builder knows my every need and He will have prepared a place for me that is so perfect that I could not want anything else. The minute I walk through the gate I will know that I am “Home”. I will be surrounded by my brothers and sisters. I will love the sights, sounds and smells to the point that I will want to stay there for eternity. Someday I will walk streets made of gold and cheavenly_sky_by_d168all it my home. Are you ready to go to this home if the Lord were to call you? Have you done your housework so to speak? Have you made things right with Him so that when it is time to go “Home”, you will be ready? As the verse above states…….for then we will be at home with the Lord.

Lynn A. C. Wilson – Resume of a Mother & Fresh Brewed Devo’s Series



Fresh Brewed Devo’s….


When I was younger and having my first son….I remember thinking that I was going to be “Super Mom”.  Yes a career woman, a mom, housewife and everything else that goes along with this.  Well…..the brakes came on and I came to a screeching halt and learned very quickly that I cannot do it all.

I very quickly learned that I can not do it all that when I tried to… something got neglected!!! Most times it was me who was neglected!  I became tired, overwhelmed, frustrated and more.  I found that my devotions were forgotten and I wondered why I was feeling so empty and I could not think clearly.img_4634

My oldest son is now 27 and my youngest is 14 and I still live a crazy life style.  Having a devo time for myself….sometimes is the last thing on my mind, if I can be honest.

Back in the day I was given a devo book for moms…it was simple, short and to the point and a big help in giving me a quick shot in the arm for the day.

I will be starting a new Devo series that I hope will do the same for you….called “Fresh Brewed Devo’s”.  It is designed to be short, simple, practical, honest and a quick shot in the arm to help you get a good start to the day and an added pep in your step.

So grab a cup of your favorite “Fresh Brewed” coffee, sit in a comfy chair and have a quick Devo with me.img_0547

Leave me some comments down below and let me know some topics that you would like to see.

Lynn A.C. Wilson – Resume of a Mother



….A person who touched a life!

Have you ever had a person who touched your life in such a way that it was life changing?  I have had several people in my life who have done this but there was one person in particular that left a huge impact for me.  Most of you would not even know who this person is or even have ever met her.  Let me tell you a little about her and what made her different.

img_0246She was born to the Wilson family over in the continent of Africa….while she was a very young girl, her parents, my in-laws became missionaries.  She grew up on the mission field learning how to serve others, love people who many might not love and in doing this she found her love of children.  Eventually she moved to New Jersey and her life continued in serving others and teaching children.  Annette loved crafts and enjoyed being with her family and helping her mom with setting the Sunday table for the guests, family and missionaries that would come to “The Sunday Meal”, as they said in the family.

I came on the picture when Annette was a grown woman and living in NJ.  She moved here with her parents and 3 brothers to set up home here.  I met Annette and her brother Graeme at a “College and Career” event at church and from there Annette and I became good friends and later her brother Graeme became my husband.

There is not a week that does not go by that I do not see a craft, a little something in a store, a bible verse or just a thought that brings me back to the Memory of this special lady.

Annette passed away at the age of 41 but left a legacy to many and I am one of the many!  Picture of sunset, Cotswolds, England March 2005Annette’s last days were spent at a children’s camp where she was a counselor to them, a friend, a mentor and someone they could feel safe with and share their hearts.  Annette was on top of a green grassy hill, sitting in the sunshine, and under a large tree.  I can just picture her sitting there with her beautiful full red hair blowing in the breeze that day as she taught 5 or 6 young girls how to do needle work.  All of a sudden she had a very painful headache and went to the infirmary for some meds and the rest is history.  In that short moment in time….Annette passed from the green img_0323grass to the streets of gold. Needless to say shock was the term we all used and these young girls were left wondering where Miss Annette went.

I share this with you because the last moment of time of what always stays with me.  Annette took the time from her schedule first of all to spend time at a camp to teach a counsel.  She took the time to sit with young girls and listen to their stories and hearts.  She took the time to teach a craft that is a lost art of many of us.  She took the time to invest in a life.

Annette will always remain my sister-in-law that passed away suddenly…..but she will always be the woman who left a lifelong memory of being there for others, being there to serve in places that I might not necessarily want to serve, being a woman who taught me to remember that children were a gift that the Lord sent us and that He said let the little children come unto me!

Thank you …Annette for this lifelong lesson that you taught me.  I am still here carrying on your work of teaching children in our kids program at church and carrying on your lesson of investing in others’ lives.

Take up the challenge and carry on the touch of a life lesson that someone taught you or showed you.  Don’t let their life and memories fade away.

Let me know what the torch is that you are carrying on….how are you investing in other lives?  I would so love to hear from you!

Lynn A.C. Wilson – Resume of a Mother