“Night to Shine”….. and that he did!!!!!

What an amazing night… What an amazing event! How many of you have someone with some type special needs and long for them to have a typical night like any other teenager could have such as a prom night? Tim Tebow foundation has created an event for people with special needs to have a prom like event for them to feel special for one night… and for them to “shine”!!!!

We were absolutely amazed at the organization, presentation, and variety of events put together in one evening. We arrived to find that girls were getting their hair, nails and make up done… while the boys were getting their shoes shined and their hair touched up. From there they went and met up with a buddy that they would have for the evening to keep them company. Then on to the horse and buggy carriage ride, and then to ride in a limousine! Once they departed from the limousine they were escorted to a red carpet where there were volunteers lined up on the carpet to root them on and cheer them on and take pictures. As our son said “I felt like a movie star”!!

Then they entered the gala… with white twinkling lights, beautiful tables decorated, a DJ, and I wonderful meal provided by Chick Fil A!

They could dance all night, they could be with their friends all night, they could feel as special as any other person ever felt on a prom night.

The final event… Would be to gather all the people with special needs and their buddies… They would be prayed over, and then everybody was crowned king and or queen of the prom with a beautiful crown or tiara.

No one was left behind and no one was left out during this beautiful moment. Everybody felt like they shined for this one special evening… our son came home feeling like he was worth something so special!!! This is one night he will never forget for the rest of his life!

Lynn A. C. Wilson– Resume of a Mother

Chiropractor and Epilepsy..does it work?

Simple and Natural is how we look at this.  We get asked all the time if the chiropractor and Epilepsy really work well together.  Now let me say that I am not a doctor and I am not in the medical profession at all….but I live with my Epileptic husband for over 30 years.  With that being said…I know my husband better than any doctor.  I have been asked over and over to explain things in detail to the doctor (since my hubby usually doesn’t know himself), as to what is happening in his life and with his seizures.  Most times…the doctor remarks on how well I really know what is going on better than most “professionals”.

So getting back to chiropractors…..YES, YES, YES they really do work.  If you are not familiar with going to one, don’t be alarmed by them.  They are not doing anything against what your body was designed to do …quite the contrary.  The best way to describe it is that they will get your spine back in line which works hand in hand with your immune system and all your other organs in your body.

After my husband has had a seizure…..most times if he was walking or standing he will crash-land on the floor.  Then we will find that he has hit is head, twisted his body by the way he fell or what he fell into.  Sometimes…it is only a day or two later that he will notice that something doesn’t seem right.  For example….about a month ago he was walking in a restaurant….as he had a seizure he dropped his plate on the floor in front of him….then ended up taking a few steps backwards, and then we guess he stiffened up and fell straight back and slamming his head and entire body to the floor.   What a jolt his body must have felt!

We went for our monthly visit to our chiropractor and he asked my hubby how things were going….as my hubby explained what had happened, he realized that his jaw was also bothering him in addition to some other things.   The doctor had a look and said Graeme had the equivalent to whip-lash from the fall and had knocked his jaw out of alignment too. This is only one example of how it has helped him after a seizure.

The list for us goes on and on with the amount of help in getting these adjustments, and also just all in all general help and health.  He seems to respond well to an adjustment immediately and right after an adjustment he tells me he feels more relaxed and clear-headed.

It has been over 20 years now we have been going this route and with a few other natural alternatives such as vitamins, herbs and oils…..this too has been a great supplement to his seizure meds.

I hope this helps shed any light to anyone else who struggles out there with seizures, epilepsy, ADHD and or Autism.  Our family has been blessed to have these doctors in our life!

Comment below if this form of medical treatment has help you and or if you have found other alternatives that you can share.  We would love to hear from you.

Lynn A. C. Wilson – Resume of a Mother

Epilepsy and Essential oils….does it really work?

I have dealt with my husband’s seizures and Epilepsy for over 30 years now.  His seizures have changed over the years from the type of seizure that he has, to the length of it and also what triggers it.  It has been a learning process for the both of us.

If you have seizures or live with someone with them….you know the drill.  You probably have struggled at some point yourself with the changes and where it takes you in life!  Let me say before I share any more….YES YES YES we live daily with everyone’s advice as to what meds, what foods, what life style, what we should and should not do etc.….. We are thankful for good friends and people who care, but when they have not lived with this….their advice can be like nails on a chalkboard!  Advice is great when you ask for it but not every time you see someone. Also, choosing a natural remedy… seems to ignite conversation in people who normally wouldn’t even talk to you. “Natural” seems to unnerve people and make them feel uneasy. In our family we tend to choose natural over Medical whenever possible. So this might be an option for you and then again possibly not if you’re not into any type of natural alternatives.

Ok enough with that…the purpose of this blog post is to share something with you about Essential oils that works for us.  This is not a medical diagnosis or a proven clinical fact…this is only what has worked for our family.

At this point in our lives….we have tried all the conventional ways and yes my husband is still on his meds.  But overall….he needs something else.  If you know Epilepsy….seizures cannot always be completely controlled and that is the case with him.

We have tried Essential Oils and we have found success!!!  Frankincense was recommended to us along with a few other oils.  What has worked and is working for us is “Oil of Oregano”.  Yes you might smell a little like a salad but who cares.  It works so well for us that we never leave home without it anymore.

When it is an “off day” for him, a long day, a rainy day, right before and even during a seizure….he/we apply it. You can use it straight on the skin (be careful since this is a hot oil), or as we have been using it ….we make up roller bottles with the oregano and a carrier oil.

Here are a few pics of what we use….I hope this helps you with either a new concept or at least to gives you an alternative to either try or just investigate for your own health.

You will see in these pictures… that you will only need four items. You would need the oil of your choice, a roller bottle, a funnel to help pour the oil into the bottle, and you would need a carrier oil. Once made… we use the roller bottle with the essential oil’s in it on his wrist, on the back of his neck and also down his spine every 2 to 4 hours or as needed.

Feel free to ask questions….if we can help we would love to share with you! We would love to get your feedback as well if you have tried essential oil’s have they been a success or a failure? Which oils have used and how do use them? Do you have a certain brand that you prefer over another and why?

Lynn A. Wilson (and hubby Graeme) – Resume of a Mother

Autism and Routine….

Routine is something hard to create and stick with in our lives….but it is a necessary thing.  I watch a You-Tube channel with “Andrea Mills”.  She talks about doing things routinely if they are important enough to you. Check out her website and channel for this topic and more.

https://www.andreamills.tv

With any type of special needs and we have two types in our family, I find as a homemaker that I need to create a way of organization for them; and not necessarily for me.  With epilepsy and Autism in our home, I find that this affects everything that we do!  For example, just leaving the house to go out for the day…we need to make a list on the back door of what we need to bring with us.  This way my husband who has Epilepsy, whether it be a good day or not, does not have to think about what to bring. Especially when it is an “off” day for him, he just looks at his list on the door.

(example list for the door)

  • travel bag
  • pills
  • water bottle
  • phone
  • phone charger

For our son has Autism.…so for his needs we have created labels in the refrigerator and also a routine of where to put things.  This way there is no frustration of where things go.  We also labeled where all of our coats go.  Again, this way it keeps things simple and organized!

We have created a “white board” system to help with all those daily questions that you find Autistic kids always asking.  They want to know what the next days meals will be 24 hours ahead of time. Our board includes 3 meals, 3 chores, 3 school events (we homeschool), and whatever the special event of the day is also.

This has proven to relieve many meltdowns, and crazy evenings in our home.  When he asks the questions that he always does by 5pm sharp, we can just refer him to the white board.

Special needs can be a struggle to the caregiver as well as the person who struggles with it.  Why not make life as routine as you can to avoid any chaos and confusion.  There will always be other issues to deal with, but when things are routine it helps out a great deal.

Lynn A. Wilson – Resume of a Mother

Autism and Essential Oils

This past weekend has been so rainy and gray around our area.  My son has Autism and my husband has epilepsy and this weather really affects them both!!!

We belong to a support group for Autism. Last night I posted on the Facebook group site about this very thing. I asked them if any of them have family members that are affected by the weather.  I asked if anyone saw any mood swings that went from happy to angry in a matter of seconds.  I no sooner posted this question and I was getting thumbs up and comments being posted like crazy. Everyone agreed how they had family members with Autism who were struggling all weekend with moods too.

Is there anyone else out there struggling with this?  After we struggled through the weekend….I then thought I would try some essential oils.  I have used this on my husband and it has helped him with his Epilepsy.  So I grabbed my oil roll-on that I made for him and tried it on my son.  WOW!!!! Within 5 minutes or less ….his mood went from a loud, angry and stimming to a happy, chilled and quieter young man.

What I used was oil of Oregano….I have had so many people tell me to use Franchisee but we have found that Oregano works better.  (at least for us).  I made a roller bottle with 15 drops of oil and filled the rest with Almond oil (any oil will work), then shook it up.  I rolled this on the back of his neck, down his spine and on both wrists.

He later came to me and said that the oils helped him and his head didn’t feel so “shaky”.  What a relief.  Now this will be one of my go-to’s for when we have these types of days around our house.

Does anyone out there use oils for these types of neurology issues?  If so what do you use and how?

Share with us what you do so that we can all benefit from this!

Lynn A. Wilson – Resume of a Mother

Minimalism…Simple….Simplify-where does life have you?

What does this mean to you?  Minimalism comes to my mind. So many of the younger generation are going this way.  Many of them have watched their grandparents and parents collect things over the years so they now have taken up with the new trend of “less” is better.

I do find that the old saying…“less is more”, can be true!  But what is less?  I have watched some “extreme” shows, where they will have a beautiful “large” house and only have a mattress on the floor, 1 dish, 1 cup, 1 fork…you get the picture and they seem truly seem happy. This is not the life that I want.

I have a friend who LOVES to collect things…did I say loves it.  She collects any and everything that you could imagine.  She has now gone through her collection and resized it.  To most people…you would still say that she has a lot of “stuff” but to her …she has simplified her life in her own way with her collections and she is a happy girl.

wilson gang

In my life…which is full of special needs and most days cioas….I need “my” type of simple.  Let me explain. My husband has Epilepsy and my youngest son as Autism…..for me this changes my life on a daily basis.  I have always enjoyed a full schedule of events, lots of involvement in family, work, church and life in general.  I like lots of hobbies, things, stuff, and decor in my home etc…I like to enjoy life as I see it….but then life doesn’t alway fit what I like!!!

Recently in my home….I have had to simplify things. Less stuff, less things and to be more practical and less nostalgic. This has been very hard for me but as I get into it …it does becoming easier. I need to create a very practical world for my two men. I need to label where things go in the refrigerator and label whose jacket goes where etc… And yet find a way to make my home still seem special and pretty to me and our guests we invite over.

Recently with my schedule….I have had to simplify that too. How do you take a girl who LOVES a full schedule and adapt it to “SIMPLE” one…so that I meet the needs of my family as well as myself.  I have and am still learning how to balance life ….I really don’t know how to explain that in words with exactly I am doing. I probably need to do a VLOG on a day in the life of me.

This might not be “minimalism” to some, but for me I need to carry a planner, snacks, change of cloths, meds, water, essential oils, band aids etc… in many different bags.  I have a travel bag, pocketbook, workbag, church bag etc…each one is filled with what I would need for that event and the extras for that “just in case I need it” moment.  This works for me….my car is full of bags stuffed with stuff.  But all this stuff to me equals an organized, simplified and simple way of living.  To me my life is now not full of stressful moments and I don’t have to think as much when life takes over and craziness begins. If you have anyone in your family with special needs you would understand. We never quite know what’s going to happen at a given moment and having these extras with us at all times and organized in designated bags for that particular event definitely helps.

Simple is defined by YOU and only you.  We should not jump on a trend just because!!! Yes, we should evaluate our lives and simplify them… but this does not mean throw everything out that you own, and live in a sleeping bag.

God has given and blessed our family many times over with things and not necessarily money…I need to use what I have, simplify what I buy and sometimes bless others with my overflow.

Remember to enjoy life and where life has you. I know that this is a unique way of looking a “simple life” but it is the way I do it.  How do you do it..leave a comment below.

Lynn A. Wilson – Resume of a Mother

Planner = sanity = a better me…..

 

file_000I am a creative person in most everything that I do!!  I love to create new recipes, decorate my home and then redecorate it again and again. And who can forget….scrap-booking, tole painting, card making, any type of paper crafting, quilling, quilting and so many other wonderful outlets.

With being a wife of an Epileptic husband and a mom of an Autistic son…. my days do not always allow me the time or frame of mind to create in the above areas that I mentioned.  I also work full-time and home-school our youngest…while doing that, I am also involved in support groups, and many ministries in and outside of my home. So a planner is a practical tool for me…. but also a much-needed outlet for me.  But I have now learned to enjoy on a smaller scale the joy of be part of the planner community and to decorate my planner.  This is an outlet that can allow me to create on days when I need to do  mindless work, and a simple creative opportunity.

To some of my family and friends…they find this just plan nuts!!!  I have always used a planner since my first job and the start of my career.  Even back then 30 years+ ago…I would add a sticker, or doodle in it with a flower or two.  I loved the look when I would open my calendar and see the art work next to the event or schedule I needed to attend.

Move forward 30+ years….and the planner community has allowed me a whole new way to create.  Are you part of it?  Have you been bitten by the planner bug?  file_004Does the smell of stickers and does pen ink excite you?  Is going to the Dollar Tree and finding a new sickly note a highlight of your day…..well it is for me and many others. Just watching my Facebook groups with new hauls and new items from Etsy and the “DT”….is so much fun.

I will share in another blog post the breakdown of my planners and how I currently use them….but this was just a quick preview of what I like to use for my daily planner. My work schedule, my daily activities, my to-do list and other misc. dates to remember are in my Mini Happy Planner.  This is a new style of planner for me this year and I am loving it!!!!!!

Here are a few pics of some of my favorite items and a picture of a before and after for both a monthly and weekly spread before the pen.file_000

Reply below and tell me how you use your planner…..what items do you like to use in it?  What is your favorite pen to use? Oh yes send pics too!!!!!

 

Lynn A.C. Wilson – Resume of a Mother

A life filled with Routine or a Life of Adventure…..

img_0775I am a Modern Day Working Mama with a homespun twist and a dash of special needs and disabilities – a life of adventure with a constant new norm. 

 I just love to watch people and how they live their lives, I try to figure out why they do what they do and I learn about what I like and don’t like and how I want to live my life. It got to thinking today when I watched three people who are in my life…and how they are living their lives, and if I want to this that way. 

Do you ever people watch?  I have a friend who fullsizerender-2was
sharing witProcessed with MOLDIVh me that he and his wife where having a “discussion” about what to buy at the food store.  Now you might ask “what is the big deal”…but we have all been there. Discussing, fighting, arguing about which Ice Cream to buy, what brand of bread to get etc…. It sounds silly and it really is and yet we let this get to us.

I have another friend who has a very, very structured life.  She maps out her life in increments of time and activities.  She will work her 8 hours and 8 hours only.  We will plan for evening after work, to take on one task which can include baking. When she goes home….she will prep, bake, clean up and call it a night. Mind you I would be washing dishes, doing a load of wash, listening to a You-Tube channel and stirring the pot for dinner …all while baking.  Her life is so planned out and she never deviates from this.

I have another friend who as I would like to say…gets upset over a pen falling on the floor.  She is wound up so timg_1913ightly that everything in life seems to bother her.  She can bully anyone in her path for the smallest thing they have done wrong and yet if you try to talk to her about anything she will burst into tears with fits of anger.  Yikes!!!

I have two other women in my life who I admire for the way they adapt to life.  Both of them deal with a “special needs” situation in their life.  One seems to run with ease …I know she will tell you that is not the case, but to me she does.  The other friend seems to just live life and take on new adventures anytime they pop in her life.

Now getting back to a life of structure or a life full of adventure…..well, you probably guessed it, I will take the life of adventure.  Yes it can be filled with chaos at times, it can be filled with half done jobs, dishes in the sink, laundry not done and drive-through for dinner. But life is too short to worry about a pen dropping on the floor, it is too short to worry about which ice cream or bread to buy and it is too short not to taste life at its finest.

If you have read my story and the journey that I am on….my life is never normal and it is always a moving target to finding a new normal.  I am a “Modern Day Working Mama with a homespun twist and a dash of special needs and disabilities – a life of variety a constant new norm”!!!img_9065

I work full-time, I am involved in three distant ministries, I homeschool, I am a mom of a special needs son, I am a wife of an epileptic,  I am a mom of adult children, I am a women who strives to live out her dreams, I am a women who loves to blog, craft, scrapbook, be a planner nerd, try new things, travel, make homemade soups, decorate her home and much, much more.

Some people ask with delight how do I do it all….they watch me on Facebook and see how full my life is.  Some watch with judgement and question all that I do and wonder if my life should be more structured.  Some watch with wonder and they would love to live this way but are afraid to step out and try it.

Now my dishes do get washed, and my laundry gets done…..we don’t run around in dirty cloths. I do stay at home and with a task list in hand at times and “try and get more organized”. fullsizerenderYet on the other hand….life keeps calling, new places to see, new things to taste, new adventures to try with my family.  I have people to meet, lives to encourage, people to share great experiences with, people to mentor, people to learn from and a whole lot of life to LIVE.

What Journey are you on? What path have you chosen to live? This is your life and your choice to make…..what do you like “structure”, “wound up tight”, or “a little chaos”?  Tell me your story in the comment below…I would love to hear from you today.img_0921

Follow me on my blog for some fun, new and interesting topics.  Like my blog post  and share with a friend who might need to rethink how they are living their life.

 

Lynn A.C. Wilson – Resume of a Mother

Modern Day Working Mama with a homespun twist and a dash of special needs and disabilities – a life of adventure a constant new norm!

#Beating the Odds…..My Story of Epilepsy.

Well…..here we are at the end of Epilepsy Awareness Month.  You have heard from me on being the wife of an Epileptic and what is the like for a spouse.  Now let me intro you to my husband who has Epilepsy.  He has struggled with this since the age of 12…he has been my husband for 30 years and has raised two sons, he worked at one point in the medical field, he drove a car, and he was very involved in many areas of life…and now find out where life has left him.  Grab a cup of coffee and take the time to read his story ….right from someone who struggles with a chronic illness daily and sometimes hourly but has found a life within this life and is #beating the odds.

resumeofamother_familyI really appreciate the opportunity to tell my story of Epilepsy in my life and what is like to live this life daily and hourly! Find out firsthand the life that some of us live and how I have adapted to a new norm.

For me it started many years ago… I guess I was about 10 years old. I had been asked to stay after school because of a problem.  I actually had been in trouble at school for something  … so when it was time to leave I jumped on my bike to ride home but I did it in anger.

When I got to the traffic light it was green for me…..but the car on the other side had a red light, and did not stop.  Needless to say the car hit me and I went flying into the windshield with my head getting hit. I can only recall half way across the road and then waking up in the hospital.

Well I was pretty beat up with a dislocated my clavicle, got a big bump on my head and chipped my front tooth.  They decided to keep me in the hospital for a couple of days under observation.  At that time they could only diagnose me with what they thought was broken …the seizures were not noted yet.  It wasn’t until a few years later that I had my first observed seizure…and that is where my story begins….

I sensed things from time to time….but it was not something that I could really explain.  Not knowing that I had a problem…..I just dealt with it the best I could.  It was a hard thing…not being able to explain to anybody what I was feeling or going through.

Not knowing what a seizure was ….I did not know what was wrong with me.  It wasn’t until years later at college that I had a large enough seizure and finally got the help that I needed.  After that….my life completely changed. One major thing that changed was that…. I learned quickly how people will treat you differently when they do not understand what is going on!  People that treated me normal…such as family and friends….now treated me like the hardly even knew me.

People will avoid you for fear that something might happen while you are with them, they are afraid of what to do.  People will just not talk to you since they don’t know what to say.  People will talk about you only feet away as if you can’t hear them…..and yes I can hear you.  They will ask my wife a question to avoid actually talking to me.  I have said to my wife that it’s kind of ironic how some people seem to be able to understand if you have a sugar problem or something else wrong…and they seem to be able to cope with that better than people with a seizure problem. Don’t be afraid of us…..we are just like you with added personality in our life.

People are educated and seem to know the steps on how to care for a person that has a sugar attack or similar …..But when somebody has a seizure… people panic!!!!

I will say that it affects every area of your life, but I will not let it have power over me!!!

A quotation that has always motivated me is and that I live by…

“Look for the good times along the way .You can’t put off enjoying life, waiting for the day when epilepsy is no longer an issue.”

 – Diane H. (Mother of patient)

Epilepsy has affected my marriage in many different areas.  It has affected how I am as a father to my two sons and now daughter-in law. My sense of self-worth is something that I struggle with all the time and trying to fit in the mold of husband and father…..my self-worth takes a back seat.

It is hard to copy-of-file_0001be the head of my home, and someone who my wife can depend on ….because many times my thoughts are not clear. I have days where I know exactly what is going on and then many days where I have to just depend on my wife and children to help direct me.  As a man that is something that is unspeakably hard for me.

After years of struggling and many situations with my seizures…..It has gotten to the point where I finally had to go on full-time disability.  Let me tell you from again a husband/fathers point of view….. it was a definite low point in my life and it took me a long time to get over it!!

I have found that having seizures has given me a unique perspective on life.  I can relate to many people who struggle with chronic illness.  The most useful perspective is with my youngest son who has Autism. Both he and I struggle neurologically with many things, I can so relate to him when no one else can.  This has been a huge blessing for him and also for my wife. It gives her a sense of security…knowing that someone can honestly understand some of what our son goes through.  There are times when both he and I have reacted to things because of our neurological problems and we can relate to each other.  For instance when the weather is stormy… I know it’s going to be a rough day for me, and I know that it’s going to be a tough day for him as well.

One true blessing in the last three years of my life has been the moving to a new church!  I have found a Pastor who accepts me …just as I am.  He is aware that I have epilepsy…yet he is willing to work with me and in doing so this has brought back my confidence and self-worth that I had lost. He always keeps an eye on me and he might come over and say “are you okay?” but I know he has my best interest at hand.  By him leading this way….it has shown the church that I am ok….it has allowed the church family to feel relaxed around me and my family.

It is still difficult though in many other ways. There are many times I have to use an electric scooter rather than walk and worry that I might fall at storecopy-of-file_0008s or other places.

I am blessed have a wonderful wife and family, as well as a strong support group in my church… and some good friends who I can depend on.  I would recommend to anybody that has any kind of health problems whether it is epilepsy or any other chronic illness to make sure that you have a good support group in your life…it WILL make a difference.

How can you help me and others with chronic illnesses….

  1. Don’t stare
  2. Don’t avoid me/us….come talk to me/us.
  3. Don’t talk as if we are not in the room.
  4. Don’t treat us like we are weird.
  5. Don’t act like if you touched us we will seize on you or that you will catch what we have.
  6. Treat us normal!!!!
  7. Treat us with respect!!!
  8. Remember we were created to be a unique person and to carry out the work that God intended. Don’t Judge us for that.
  9. Remember that people with illnesses are not being punished for past sins!
  10. Most of all remember we are a human being with families, lives and feelings. Treat us the same way you would like to be treated.

Feel free to comment below if I can help you in any way.  My wife and I would love your feedback and to hear from you.

Thank you for letting me share my story and if you have not read her Blog yet on being the “Wife of an Epileptic”.…check that article out too.

Graeme M Wilson I – Husband of Resume of a Mother