“Night to Shine”….. and that he did!!!!!

What an amazing night… What an amazing event! How many of you have someone with some type special needs and long for them to have a typical night like any other teenager could have such as a prom night? Tim Tebow foundation has created an event for people with special needs to have a prom like event for them to feel special for one night… and for them to “shine”!!!!

We were absolutely amazed at the organization, presentation, and variety of events put together in one evening. We arrived to find that girls were getting their hair, nails and make up done… while the boys were getting their shoes shined and their hair touched up. From there they went and met up with a buddy that they would have for the evening to keep them company. Then on to the horse and buggy carriage ride, and then to ride in a limousine! Once they departed from the limousine they were escorted to a red carpet where there were volunteers lined up on the carpet to root them on and cheer them on and take pictures. As our son said “I felt like a movie star”!!

Then they entered the gala… with white twinkling lights, beautiful tables decorated, a DJ, and I wonderful meal provided by Chick Fil A!

They could dance all night, they could be with their friends all night, they could feel as special as any other person ever felt on a prom night.

The final event… Would be to gather all the people with special needs and their buddies… They would be prayed over, and then everybody was crowned king and or queen of the prom with a beautiful crown or tiara.

No one was left behind and no one was left out during this beautiful moment. Everybody felt like they shined for this one special evening… our son came home feeling like he was worth something so special!!! This is one night he will never forget for the rest of his life!

Lynn A. C. Wilson– Resume of a Mother

Chiropractor and Epilepsy..does it work?

Simple and Natural is how we look at this.  We get asked all the time if the chiropractor and Epilepsy really work well together.  Now let me say that I am not a doctor and I am not in the medical profession at all….but I live with my Epileptic husband for over 30 years.  With that being said…I know my husband better than any doctor.  I have been asked over and over to explain things in detail to the doctor (since my hubby usually doesn’t know himself), as to what is happening in his life and with his seizures.  Most times…the doctor remarks on how well I really know what is going on better than most “professionals”.

So getting back to chiropractors…..YES, YES, YES they really do work.  If you are not familiar with going to one, don’t be alarmed by them.  They are not doing anything against what your body was designed to do …quite the contrary.  The best way to describe it is that they will get your spine back in line which works hand in hand with your immune system and all your other organs in your body.

After my husband has had a seizure…..most times if he was walking or standing he will crash-land on the floor.  Then we will find that he has hit is head, twisted his body by the way he fell or what he fell into.  Sometimes…it is only a day or two later that he will notice that something doesn’t seem right.  For example….about a month ago he was walking in a restaurant….as he had a seizure he dropped his plate on the floor in front of him….then ended up taking a few steps backwards, and then we guess he stiffened up and fell straight back and slamming his head and entire body to the floor.   What a jolt his body must have felt!

We went for our monthly visit to our chiropractor and he asked my hubby how things were going….as my hubby explained what had happened, he realized that his jaw was also bothering him in addition to some other things.   The doctor had a look and said Graeme had the equivalent to whip-lash from the fall and had knocked his jaw out of alignment too. This is only one example of how it has helped him after a seizure.

The list for us goes on and on with the amount of help in getting these adjustments, and also just all in all general help and health.  He seems to respond well to an adjustment immediately and right after an adjustment he tells me he feels more relaxed and clear-headed.

It has been over 20 years now we have been going this route and with a few other natural alternatives such as vitamins, herbs and oils…..this too has been a great supplement to his seizure meds.

I hope this helps shed any light to anyone else who struggles out there with seizures, epilepsy, ADHD and or Autism.  Our family has been blessed to have these doctors in our life!

Comment below if this form of medical treatment has help you and or if you have found other alternatives that you can share.  We would love to hear from you.

Lynn A. C. Wilson – Resume of a Mother

Autism and Routine….

Routine is something hard to create and stick with in our lives….but it is a necessary thing.  I watch a You-Tube channel with “Andrea Mills”.  She talks about doing things routinely if they are important enough to you. Check out her website and channel for this topic and more.

https://www.andreamills.tv

With any type of special needs and we have two types in our family, I find as a homemaker that I need to create a way of organization for them; and not necessarily for me.  With epilepsy and Autism in our home, I find that this affects everything that we do!  For example, just leaving the house to go out for the day…we need to make a list on the back door of what we need to bring with us.  This way my husband who has Epilepsy, whether it be a good day or not, does not have to think about what to bring. Especially when it is an “off” day for him, he just looks at his list on the door.

(example list for the door)

  • travel bag
  • pills
  • water bottle
  • phone
  • phone charger

For our son has Autism.…so for his needs we have created labels in the refrigerator and also a routine of where to put things.  This way there is no frustration of where things go.  We also labeled where all of our coats go.  Again, this way it keeps things simple and organized!

We have created a “white board” system to help with all those daily questions that you find Autistic kids always asking.  They want to know what the next days meals will be 24 hours ahead of time. Our board includes 3 meals, 3 chores, 3 school events (we homeschool), and whatever the special event of the day is also.

This has proven to relieve many meltdowns, and crazy evenings in our home.  When he asks the questions that he always does by 5pm sharp, we can just refer him to the white board.

Special needs can be a struggle to the caregiver as well as the person who struggles with it.  Why not make life as routine as you can to avoid any chaos and confusion.  There will always be other issues to deal with, but when things are routine it helps out a great deal.

Lynn A. Wilson – Resume of a Mother

Autism and Essential Oils

This past weekend has been so rainy and gray around our area.  My son has Autism and my husband has epilepsy and this weather really affects them both!!!

We belong to a support group for Autism. Last night I posted on the Facebook group site about this very thing. I asked them if any of them have family members that are affected by the weather.  I asked if anyone saw any mood swings that went from happy to angry in a matter of seconds.  I no sooner posted this question and I was getting thumbs up and comments being posted like crazy. Everyone agreed how they had family members with Autism who were struggling all weekend with moods too.

Is there anyone else out there struggling with this?  After we struggled through the weekend….I then thought I would try some essential oils.  I have used this on my husband and it has helped him with his Epilepsy.  So I grabbed my oil roll-on that I made for him and tried it on my son.  WOW!!!! Within 5 minutes or less ….his mood went from a loud, angry and stimming to a happy, chilled and quieter young man.

What I used was oil of Oregano….I have had so many people tell me to use Franchisee but we have found that Oregano works better.  (at least for us).  I made a roller bottle with 15 drops of oil and filled the rest with Almond oil (any oil will work), then shook it up.  I rolled this on the back of his neck, down his spine and on both wrists.

He later came to me and said that the oils helped him and his head didn’t feel so “shaky”.  What a relief.  Now this will be one of my go-to’s for when we have these types of days around our house.

Does anyone out there use oils for these types of neurology issues?  If so what do you use and how?

Share with us what you do so that we can all benefit from this!

Lynn A. Wilson – Resume of a Mother

The life of a Wife of an Epileptic….how hard can it really be?

I remember when I started to date my husband and he said he had Epilepsy….it was a whole new world to me.  I watched and learned to know what he needed and what caused problems, so I would be a help.  His seizures were much different then and they didn’t even seem to be a challenge…little did I know.

My Wedding day……I remember standing at the img_0760top of the aisle ready to walk down to be married….my father whispered to me….”you don’t have to do this”.  He was reminding me that he had a long talk with me and that my life would be different, it would be hard, and we would not always know what was coming.  He wanted me to really think about this decision and not jump into a marriage that was not a fairy tale. Thisimg_0663 committment would be to myself, my future husband and children.  It would be a life that I would choose and not forced into…..and it would be a life time committment and a vow.

Well I can tell you almost 30 years later….we are still together.  I love him more now than I did 30 years ago.  Do I love his seizures?  Well….what I can say is that this is part of the package that makes up my husband and who he is and since I love Graeme…I need to accept this situation with as much grace as I can.

Is life easy as his wife?  No life is not… life is hard, frustrating, challenging and sometimes so overwhelming that I feel like I cannot breathe.  I can say that for me… I can understand what it is like to feel alone and yet be married, I can understand what is like to be a single parent and yet have a husband/dad always around, I can say that I understand the challenges of role reversal.  Let me explain a little about this…..

Epilepsy comes in all shapes and sizes!  Each day is never the same….we make our plans and then life takes over.  If my husband is having seizures….mood swings can come, anger issues, depression, lack of memory, needing tons of sleep and a total change of schedules and life style instantly.  These symptoms can also come on the “good” days when he is not having seizures which makes the good days not so good.  For us we have about 2 days a week of a really “good” day…and the rest are filled with these symptoms of some sort.

img_0757This leaves situations for me to handle on the fly all the time.  We can plan a family vacation, holiday or event and all of a sudden I am going it alone.  I might have Graeme with me but mentally and physically he is really not there with me.  This has left me many times….taking care of the kids and whatever else is needed pretty much on my own.  Many nights I get home from work to find him quiet, depressed, or seizing…..so then my nights arimg_0758e basically spent alone.

I find myself alone in my thoughts too…I don’t always know how to help him, I am afraid and fearful of what life can bring, I am tired and weary at times from just “keeping it all together” for my kids and making it as much of a “normal life” as I can for them….and I am still learning that “normal” is a moving target.

Now with that being said…..I don’t want to paint a horrible picture of our life.  YES, life is tough and YES it is VERY hard at times but we have a beautiful life!  My husband has been a rock in our family even when we feel like we are crumbling.  He has set the stage for us on his good days to walk close to the Lord for strength, for wisdom and guidance.  My problem is that I veer away from this path that I should be on daily and fear and anxiety sets in for me.  Graeme has allowed me to evolve into the woman who I need to be for our family.  I need to work full-time to keep a roof over our heads.  Graeme stays home and manages the home better than I ever could, he assists me in homeschooling our children, make the phone call’s needs, and keeps the running “to-do list” as current as he can for me.

I am blessed to have someone who fights daily with this thing called Epilepsy. I am blessed to have someone who does so much for us as a family.  I cannot even imagine as a man how he must feel.  He cannot work outside the home, he cannot drive, he cannot play sports, he cannot hang out with the guys, he cannot do the “normal” things
that he would like when he would like to and sometimes he will never do many of the things he dreamed about.  Yet he strives to beat the odds, lift his head and move forward daily!  Yes he suffers from down days….but his strength comes from the Lord and keeps him striving for a purpose filled life.img_0759

What can I recommend to other spouses who stand by and watch and stand by and support their spouse with Epilepsy? First before anything ….take care of !!!  I find that we put everyone before ourselves and then there is nothing left.  Take time for a good cup of coffee, take time for devotion, take time to sleep, eat and take time for a segment of time just for you…to shop, have fun, go to a movie etc….  Make a point of finding a support system for your family, your spouse and a separate one for yourself.  Support can come in the form of a structured support group, a Facebook group, family, friends, and your church group and in other ways that you might find. Also, remember you are living this unique life and not your friends and family who “think they understand”.  Sometimes there is a need for you to say stop, no, wait, not now….leave us alone, no thank you.  You are the one who needs to take a stand and protect what is yours…..we live with this and we know better than anyone else what is needed….be gracious if you can but be firm too.

Please let me know what your story is in the comments below….please let us know where you find your support. I would love to hear from you all!!!!!

Lynn A.C. Wilson – Resume of a Mother

 

Epilepsy Awareness and the Do’s and Don’ts…

November is “Epilepsy Awareness” month….but I often wonder is anyone really aware or how much do people really know?  We are a family who has been affected by Epilepsy.  We know what it is like to live with this daily; we know what it is like to live a different life copy-of-file_0005than most.  We know what it is like to consistently tweak our schedule, routine, meds, family events and almost everything else.  We know what it is like to just think that “we got it”, to find out we don’t…and what we thought caused the seizures changed again.

I wanted to write something about some of our challenges when trying to live a “normal” life and also in spite of this thing called Epilepsy.

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How has Epilepsy affected our family….let me list a few things that either you will relate to or hopefully will give you some insight to what “normal” is for us…

  1. Seizures daily
  2. Mood swings daily
  3. Anger issues
  4. Depression
  5. Loss of full time work
  6. Loss of friends
  7. Way to much advice from everyone as to what we are doing wrong
  8. Loss of a drivers license
  9. Large medical bills
  10. Health insurance issues
  11. Always trying new meds
  12. Trying to balance being a parent with your kids when Epilepsy gets in the way
  13. Trying to balance being a spouse with your wife when Epilepsy gets in the way

copy-of-file_00071 in 26 Americans will develop epilepsy in their lifetime. An estimated 3 million Americans and 65 million people worldwide currently live with epilepsy. Each year at least 200,000 people are diagnosed with epilepsy. In two-thirds of patients diagnosed with epilepsy, the cause is unknown.

http://www.cureepilepsy.org/ or http://www.epilepsy.com/

Epilepsy is real and does affect many, many families.  Each story is different and each person is unique!

I write to you today not to complain but to explain.  We are a typical normal family with an added member call Epilepsy.  We believe that this is part of what has been ordained to becopy-of-file_0001 the package that makes up our family.  We call ourselves the #teamgwilson
….and we strive to live each day to the fullest, we try to beat the odds, aim for a
fun filled live, not hold onto what we do not have etc…

Our greatest strength comes from the Lord!  We also find strength in our church family, family and friends and some support systems that we have put in place.

With most disabilities we as humans are normally frightened by it.  It is different…we don’t know what to say, what to think, where to look etc… Just remember that these people are human, and have feelings.  DO NOT treat them different or like they have a rare disease.  DO NOT offer advice when you have no clue what is going on. DO NOT pamper them. DO NOT ignore them when they walk in a room, walk the other way and DO NOT feel sorry.

My husband is one of the strongest men if not the strongest man that I have ever met.  He is a true example of what a life with Epilepsy can be when someone purposes in their heart to live a filled and purposeful life.

We will be writing a 3 part articles this month to share and encourage you all on this subject.  To help paint a full picture the articles will include….what is like to be the wife of an epileptic, what is like to be the son and grow up with an epileptic dad and then what is like to be the EPILEPTIC person.

Feel free to let us know part of your story in the comment below.

Thanks for sharing our lives with us!

Lynn A. C. Wilson – Resume of a mother